Down syndrome resources
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Whether you are the person living with Down syndrome, a carer, family member or friend, there are some great resources and support groups available to help you with practical and emotional support. Support groups, either in the community or online, can offer you the opportunity to get in touch with people in a similar situation and share experiences and information.
Key points:
- Making sure you, as either a person with Down syndrome or as a carer or family member, are supported is important
- You can find support online or in person depending on what you’re comfortable with
- Being involved in a support group can help you get information from people in a similar situation
Associations
Down syndrome associations across Australia provide information and offer access to workshops and support groups for people with Down syndrome but also for parents, carers and siblings. Find the Down syndrome association in your state or territory below and contact them to find out what groups they run, or call the national information line on 1300 881 935.
Australian Capital Territory
ACT Down Syndrome Association
Building 1, Pearce Community Centre, Collett Place, Pearce
PO Box 717 Mawson ACT 2607
P: 02 6290 0656
E: [email protected]
W: actdsa.org.au
South Australia
Down Syndrome South Australia
4 McInnes Street, Ridleyton SA 5008
P: 08 8245 4600
E: [email protected]
W: downssa.asn.au
Victoria
Down Syndrome Victoria
18/71 Victoria Crescent Abbotsford VIC 3067
P: (03) 9486 9600
E: [email protected]
W: downsyndromevictoria.org.au
Queensland
Down Syndrome Queensland
282 Stafford Road, Stafford QLD 4053
P: 07 3356 6655
E: [email protected]
W: downsyndromeqld.org.au
Western Australia
Down Syndrome Western Australia
Suite 3, 2 Canning Highway South Perth,
PO Box 338, Bentley WA 6982
P: 08 6253 4752
E: [email protected]
W: downsyndrome.org.au/wa/
Northern Territory
Down Syndrome Association of the Northern Territory
Shop 75 Smith St Darwin NT 0800
P: 08 8985 6222
W: downsyndroment.com.au
Tasmania
Down Syndrome Tasmania
PO Box 1157, Devonport TAS 7310
P: 1300 592 050
E: [email protected]
W: downsyndrometasmania.org.au
New South Wales
Down Syndrome New South Wales
Level 6/410 Church St, North Parramatta NSW 2151
P: 02 9841 4444
E: [email protected]
W: downsyndromensw.org.au
Websites
You can find a wide range of information on Down syndrome on the internet, including websites offering support and information.
Down Syndrome Australia
18/71 Victoria Crescent, Abbotsfield VIC 3067
P: 1300 881 935
E: [email protected]
W: downsyndrome.org.au
National Down Syndrome Society
E: [email protected]
W: ndss.org
Online Forums
Online forums are a great way to engage with parents, carers, family, friends and people with Down syndrome for support and advice. Start the conversation today by joining these Facebook forums.
- ADHD, Autism, Asperger’s, SPD & Down Syndrome Support Group
- Down Syndrome
- Down syndrome and Families in South Australia
- NDIS and me
- Parents of Adults with Down syndrome, Victoria, Australia
What resources do you use to get support? Tell us in the comment section below.
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