Down syndrome resources

Key points:

• Making sure you, as either a person with Down syndrome or as a carer or family member, are supported is important
• You can find support online or in person depending on what you’re comfortable with
• Being involved in a support group can help you get information from people in a similar situation

Associations

Down syndrome associations across Australia provide information and offer access to workshops and support groups for people with Down syndrome but also for parents, carers and siblings. Find the Down syndrome association in your state or territory below and contact them to find out what groups they run, or call the national information line on 1300 881 935.

Australian Capital Territory

ACT Down Syndrome Association
Building 1, Pearce Community Centre, Collett Place, Pearce
PO Box 717 Mawson ACT 2607
P: 02 6290 0656
E: admin@actdsa.org.au
W: actdsa.org.au

South Australia

Down Syndrome South Australia
4 McInnes Street, Ridleyton SA 5008
P: 08 8245 4600
E: info@downssa.asn.au
W: downssa.asn.au

Victoria

Down Syndrome Victoria
18/71 Victoria Crescent Abbotsford VIC 3067
P: (03) 9486 9600
E: info@dsav.asn.au
W: downsyndromevictoria.org.au

Queensland

Down Syndrome Queensland
282 Stafford Road, Stafford QLD 4053
P: 07 3356 6655
E: office@downsyndromeqld.org.au
W: downsyndromeqld.org.au

Western Australia

Down Syndrome Western Australia
Suite 3, 2 Canning Highway South Perth,
PO Box 338, Bentley WA 6982
P: 08 6253 4752
E: admin@downsyndromewa.org.au
W: downsyndrome.org.au/wa/

Northern Territory

Down Syndrome Association of the Northern Territory
Shop 75 Smith St Darwin NT 0800
P: 08 8985 6222
W: downsyndroment.com.au

Tasmania

Down Syndrome Tasmania
PO Box 1157, Devonport TAS 7310
P: 1300 592 050
E: info@downsyndrometasmania.org.au
W: downsyndrometasmania.org.au

New South Wales

Down Syndrome New South Wales
Level 6/410 Church St, North Parramatta NSW 2151
P: 02 9841 4444
E: admin@dsansw.org.au
W: downsyndromensw.org.au

Websites

You can find a wide range of information on Down syndrome on the internet, including websites offering support and information.

Down Syndrome Australia
18/71 Victoria Crescent, Abbotsfield VIC 3067
P: 1300 881 935
E: info@downsyndrome.org.au
W: downsyndrome.org.au

National Down Syndrome Society
E: info@ndss.org
W: ndss.org

Online Forums

Online forums are a great way to engage with parents, carers, family, friends and people with Down syndrome for support and advice. Start the conversation today by joining these Facebook forums.

• ADHD, Autism, Asperger’s, SPD & Down Syndrome Support Group
• Down Syndrome
• Down syndrome and Families in South Australia
• NDIS and me
• Parents of Adults with Down syndrome, Victoria, Australia

What resources do you use to get support? Tell us in the comment section below.

Related content:
What is Down syndrome?
Madeline’s story: Walking the runway for equality